Touched by Fire

Carla (Katie Holmes) and Marco (Luke Kirby), prepare to be taken to their home planet. No, I'm not kidding

So, I watched the movie ‘Touched by Fire’ yesterday, by myself, while my wife was out shopping. Well, about 2/3rds of it because she came back.

I didn’t want here to see my reactions to the film. And, to be honest, I wanted to watch it alone, just in case there were any reactions. And there were. 

This requires an explanation which I’ve tried to give my wife in my own recently disjointed style of explaining myself. There are activities at home which, while they may seem innocuous to the outside observer, would make me feel self-conscious if anyone saw them.

Often, I wander from room to room, stopping to examine things, especially in the basement where I pull out old artifacts of a previous life or stare at fading photographs of a family long gone. I realize so much of this is self-torture, yet I’m drawn to it anyway.

I’ll talk to myself – long rambling soliloquies that either try to explain my actions to myself for the 119^th time or a string of things I need to remember or comments on current events. I can only do this alone for reasons that, for anyone similarly afflicted, are all too obvious.

Many times, I’m buried in the Internet (interesting choice of words) doing what I usually do: finding the information that reinforces my cynical and negative view of humankind. I guess if human society is stark raving mad, I must not be so bad. Current events are reinforcing this view at a prodigious rate.

So, we come to the movie. Briefly, it’s about two young people, probably in their mid-20s, both afflicted by bipolar, both having trouble staying on their meds. They annoy their families, are given to delusional, grandiose thinking and land up meeting each other in a mental hospital where their manias merge like two flaming suns and lead then down the rocket slide to near total insanity.

They are both rescued, a few times, a return to the mental hospital where they are put back on medication. Although the staff tries to keep them apart for their own good, they find each other again, a pregnancy results with all its usual complications and . . . well, I won’t ruin the ending. 

The important thing to me was how much I saw of myself in the characters. Now in middle age where the body (and the medications) start to regulate the amount of mischief the mania mind can accomplish, I had to think back when I was in my 20s and 30s with more freedom to act on my delusions and yes, I can see more of myself in their behavior. It just came out in different ways and circumstances. No two bipolars are alike, after all.

And the movie couple are bipolar1 and I am a twosie which means my whipsaws between depression and mania are not so sharp. Also, not being on your meds makes both the ones and twos equally capable of fucking up their own and others’ lives. Us twosies tend to fall much more on the depressive side of the scale but in some of us, although our manias are less bombastic, they can last longer and, in some cases, do more long term damage to our lives and others around us. 

What happens to Marco is what many guys with bipolar disorder struggle with. He finds that on his meds when he attempts to have sex with Carla he feels nothing and can’t get into it at all. The mind is willing, to a certain degree, but there seems to be a governor on the body’s and mind’s ability to carry out the act. This is MAJOR issues with men on medications for bipolar. The other problem is that the meds, while keeping your behavior and thoughts within a socially acceptable range, also tend to crush the creativity and heightened enjoyment of life most people in mania experience.

At one point in the movie, Carla assures him, based on what their psychiatrists say, that he will gradually be able to experience the full range of motions (not always true). Marco replies he doesn’t want the full range of motions – he wants mania. 

Whether you’re a onsie or twosie, great things can be accomplished on mania. Much of it is artistic – writing, painting, dance, etc. Much of it is activity based – a sudden compulsion that the whole house is now out of style and needs a complete makeover – and you do it. I can still remember gardening at night (yes I know it’s an R.E.M. song). Personal relationships are at risk – everyone else suddenly seems more attractive and interesting than your partner and you want to feel the rush of what it’s like to start a new relationship – no matter who gets hurt, because you’re not thinking of that. Sometimes you just want to get away – to travel and grab as many experiences you can while family members are left baffled by this sudden compulsion to take an instant vacation – alone. And then there are the other compulsions toward great creation and schemes. 

My mania gave me the incredible (to me now) ability to build a bookstore out of nothing including all the planning and design. My ex-wife wandered into my store for the first time and her jaw dropped. “You actually made it happen,” she said amazed. “You actually did it.”

So it cost me a marriage. But what an accomplishment!

At some point when the maniacal haze burns itself out or when the meds start working, the bipolar person has a crushing realization, a kind of ‘what in God, possessed me to DO that?’ The refrain is similar: it seemed like a fantastic idea at the time. Many times, in this phase which is often accompanied by depression and severe regret, we want to apologize to all the people whose lives we’ve upended or hurt. And apologize over and over again.

But after the mania burns out and time passes and we’re good little boys and girls and take our meds, there comes a longing for the energy and excitement of that time. Things get hum-drum and boring playing at life using the normal rules. We miss a time when things were fresh, new and exciting. We don’t forget the wreckage we left behind but we’d just like to feel what we felt when we were able to accomplish something so grand and glorious. Because now we can’t.

Because now we’re accomplishing holding down a job, taking care of our living spaces and significant others and marching slowly and safely through a life that no longer inspires us. And death awaits. For many men, it’s the long, slow, middle aged march to the grave where, instead of firing up grand, exciting ideas in your mind, you spend more time checking your bank accounts and what’s in your retirement savings. Hardly seems like living. 

You make and lose a lot of friends along the way until you’re left either partially or totally alone. I miss the parties of my youth but I can tick off the last five times recently I tried to become part of a group in some way and landed up either alienating or being alienated from them. 

And we begin to think that for our own good, perhaps we should just stay at home when we can, inside our homes with our significant others and limit human action to Facebook, where we run in to trouble anyway.

Notice how many times I have switched between ‘I’ and ‘we’ in this piece? Draw your own conclusions. 

Would I recommend ‘Fire of the Mind?’ Yes, even though the writing falls into sentimental claptrap, stock parental characters give stock parental lines and some of the acting and writing could have used a bit more of a realistic makeover. It’s enough, as usual, to make any afflicted person steer away from being honest about their condition to anyone, especially to mental health professionals.

I’m cautious that the film will not dispel but reinforce stereotypes about bipolar people and people with other mental illnesses in general. Is it worth the attempt? After all, ‘Rainman’ did so well to raise the awareness of autism, didn’t it? Well, if you want an honest answer to that question, ask anyone on the autism scale who has seen the movie. And so it is the same here too.

I suppose we could make the distinction between bipolar people who are relatively easy to spot and the vast majority of those who sit quietly next to you on the bus or plane, who write the articles you read, make the food you eat, create the art in galleries you marvel at, etc. And you’d never really know. How about the person at the business meeting who has an idea and his/her enthusiasm is so infectious, that everyone in the room is fired up by the idea (which may or not be feasible since the long-term prospects may not have been considered) that they jump out of their chairs in support and the boss says “we need more people like him/her around here!”

Yeah, they could be. 

Because life and relationships are long, we reveal ourselves in some way eventually. Either peers don’t recognize this sudden change of energy and idealism or regard it as symptomatic of some other factor or mental illness. Many times, I’m sure, people think the bipolar person has discovered some new kind of recreational drug when they truth is, they’ve actually stopped taking a drug.

The author David Foster Wallace, whose affliction and brilliance is reflected in his writing, was similarly tortured with what most professionals diagnosed as depression which began as a child and which he referred to as ‘the bad thing.’ He was able to create brilliant work while making his way, somewhat awkwardly, through the world of normals. He worried however, as the pressure grew from those in publishing and his fans to continue to produce even better writing, that the meds were inhibiting his creativity. In fact, I suspect ‘Infinite Jest’ was probably written off his meds.

Anyway, Wallace stopped taking his Nardil which led to severe behavior issues. At this point, both Wallace and his shrinks flailed around for something else that would work – anything that would work. In desperation, Wallace went back on Nardil but it no longer worked for him. As we say in the world of psychotropic meds, once a med craps out on you, it craps out forever.

Long story short, Wallace tragically hung himself. 

But when you take an honest look at Wallace’s behavior throughout his life, I think a strong case can be made that he was also on the bipolar scale. My early diagnosis of depression or major depressive disorder, masked the bipolar that was hiding behind the depression. Remember, your psychiatrist/psychologist only sees you for one hour bits of time where you could be anywhere on the scale. They don’t live with you, go to work with you, see your personal interactions. They know what you tell them, true or false (or somewhere in the middle) for the slim hour a week they see you. They really don’t know you. Sometimes no one really does. 

So, we’re left with a confusing mix of people with bipolar, ones and twos, with varying symptoms that wax and wane due to many different reasons. And movies can never really display a compendium of the average bipolar person. Movies must be entertaining and broad to be profitable. We get that. So, it’s a double-edged sword of hoping for awareness while fearing further stigma.

But, rounding out this terribly long post, ‘Touched by Fire’ did deliver a few serious gut punches to me. I could predict some of the action. I could see myself in some of the situations or dialogue. And if you’re wondering, yes, sex between two people in high mania could move mountains. . . before destroying them.

So, with all of those caveats, it’s worth seeing. If nothing else, I could identify with some of it which made me feel a little more comfortable with myself while still mourning what was and what will never be again – and for good reason. The ending imparts that lesson.

Ruinations on Bipolar and Life

It's taken me the better part of my life to realize that I have always carried this disease of the brain and I shall take it to my grave.

It has been the catalyst of a series of up and down mood swings which have largely determined the trajectory of my life. How much control did I really have? How much control does an alcoholic have? A drug addict? There were times I felt I was totally in control. Those were the most dangerous and destructive times of my life.

So sometimes I think that when I am feeling my most down I am the safest. I am aware totally of what is happening to me and even though the feelings suck, to put it mildly, I am well aware of my capability and liabilities under this conditions.

When I have been at my most confident is when I have taken leave of my senses - sometimes partially and sometimes almost totally.

Of course as years go by and my memory becomes like a sharp knife poking at my conscience, I look back and wonder how I could have made such destructive and hurtful decisions. The terrifying thing is that it all seemed like a good and exciting idea - at the time.

Bipolar people are good at apologizing. One might say that when we come to our senses, we are the masters of drawn, out, maudlin, emotional apologies. This is not to say they are not genuine - they are for we are not psychopaths. It's just when we are moved to apologize for past acts we're in a state of 'thoughtful depression' and more succeptible to grand, moving spectacles of 'I'm sorry.'

After awhile, the apologies pile up over the years and our memories torture us with the things that might have been had we, somehow, been able to seize upon some kind of will and behave with rationality, empathy and compassion. We tend to leave a lot of broken and dazed victims in our wake, especially those we love.

I don't have the answer. This blog for instance, is one I cannot write continuously. I write, not only when I feel the need to, but when I mentally and physically can. You can talk about spoon theory but there are other things at play. The brain fog, the apathy, the belief that no one gives a damn about what you have to write and whether the medications are working better than usual.

Writing, work, family relations, sociability - it's all the same. Sometimes our interactions operate smoothly, like a well-maintained car. Sometimes we can get by with the engine sputtering. Other times, it's crash and burn. We try to anticipate, read our own bodies and minds and take medications when we feel we need them. It is the ultimate inexact science.

I think the older one gets, the danger is that one becomes battle weary. I know I fight that every day. It gets harder to cherish the good days because they seem futile. We know the bad days will at least even them out. It's just a matter of time. It's like being being in a nice prison with plenty of food, recreation and creature comforts. Just every so often, for no reason at all, you get thrown into solitary confinement. Maybe for a day, maybe for a week.

I often wondered how I would do in solitary confinement. I have the ability to stare at a wall for hours and live in my head. Hopefully, I'll never find out.

This essay was inspired by a meme I saw on twitter this morning. It read "describing your mental illness is like trying to describe color to a blind person."

I though about that for a little while. I have tried every way I can from when I was a child to a young adult to now to provide an explanation that would make sense to the normals. The best thing I can come up with is this: other people are competing for space in my brain.

I sit in my living room, the cat is cozied up to me and late afternoon light is streaming through the front window. The only sound, other than my typing, is the tick tock of the cuckoo clock - the one that was a wedding present in 1984 from a long lost sister-in-law. She had good taste. It's a nice clock.

But I become very aware of the silence otherwise and my need to say something, regardless of how mundane or ponderous my prose might be. I feel that I can't say much anymore. I am marked at work and can no longer try to seek understanding. I still find it incredible that I must have apologized a couple of hundred times for what I said but my employer could not bring themselves to apologize even once for what I was put through. Not even for almost getting shot in front of my wife.

As John Wayne said - it's a sign of weakness. And weakness is not tolerated unless you have rank and status. So it is with my employer. But I will write anyway. If they lay claim to my words, I will burn them. They have already laid claim to my behavior and my livelihood - they will not have my words. Never again.

No one realizes how incredibly difficult it is for someone with my condition to function in a system where they are not respected. Every day I feel like I am being treated with kid gloves no matter how professional my work and behavior may be. Zero tolerance, zero humanity.

I guess that is why I sit here and listen to the clock tick and wonder what it all was for. It has been a ride to be sure. I wish I had not left so much wreckage in my wake. Wherever death takes me, I am sure that will be levied on the debit side of my account. I want it not to be over just yet. Even though everything seems to be winding down slowly, I would like just a few more adventures; a few more grand things to look forward to before the brain fog closes in for good.

I was in the Costco today. For some strange reason, I became sad. The same way I do in the halls of the Home Depot. I remember a going down similar halls on my last great adventure a decade ago - a grand achievement made during my last great manic period - and a great disaster that cost me a marriage.

Ten years before that, there was another grand manic period that accomplished the same thing - a great return to my career and a shattered marriage.

But during those times, the senses were heightened and the fire was in my belly. The air smelled different, the sun shone brighter, I had energy, enthusiasm and drive. I could do anything I set my mind to.

Such great accomplishments aside such great tragedies, such is life, I suppose for people like us.

I would like not to feel the chain-weights of depression and lethargy; of hopelessness and dysthemia. But the only other option is another flame out. As exciting as might seem, I would rather be this morose medicated mess that the streaking star that leaves eventual regret.

And the clock ticks and I think - is that all there is now? Why can't I have one last spurt of creativity and energy without the resultant destructiveness? Why does it have to be one or the other?

I don't know. Such is my and many others lot in life, I guess.

Does any of this make any sense?

Funeral for a friend

My best friend in high school died over the holiday. He was my age. 

I hadn’t spoken to him since May of 2005 and I distinctly remember the phone call.

Frank apparently died alone in his apartment in Florida and was found two days later as a result of a health and welfare check. I hate that he went that way.

I don’t know what took his life. 

I met Frank in late August of 1977 when he plunked down in front of me in homeroom our Freshman year in high school. We were arranged alphabetically and this is just the way it turned out. We struck up a friendship that lasted on and off for decades. 

To say Frank was something of a free spirit misses the mark – he was a total goof off with a heart of gold. He had a wonderful habit of getting into scrapes due to his adventurous spirit. I could tell many, many stories of the fun we had but I will just recount one for now.

Back in 1980, the airlines were having fare wars. Frank, always flush with cash from his father’s Air Force inheritance, decided we (around the six of us who were close to him) should have dinner some night in Washington DC.

Of course we lived in the Cleveland area. Frank put down the cash and bought the tickets.

Now, none of us really felt our parents would be up to what Frank had planned so he did something deliciously sneaky – he had us going to the airport from school, taking the 5 p.m. flight to Reagan National, landing at 545, taking a cab to Hogate’s (seafood) on the Potomac (my idea), having a two hour dinner, then taking a cab back to the airport to catch an 815 p.m. flight to Cleveland that would get us home by 9 p.m., our parents none the wiser for the cover story was we went to the movies.

I begged off as we grew closer to the date. I just couldn’t imagine the grief I would catch from my father if I got caught. Knowing my dad, well, I had enough of his volcanic temper growing up and didn’t want to poke the bear anymore. 

Alas, Frank being Frank, he could not keep his secret to himself. After all, he had scored some major savings on these tickets AND scheduled the whole thing to wrap up in less than six hours on a weekday. You had to hand it to him. 

As an aside, Frank also had another idea, based on two of his favorite movies ‘The Gumball Rally’ and ‘Smokey and the Bandit’ for a race from the Cleveland area to Kentucky and back. Calling it ‘The O-K Stogie Race,’ the gimmick was, once in Kentucky, you had to buy a pack of smokes with the state’s revenue sticker on them to prove you crossed the Ohio River. Then, the first person back to Mentor, Ohio with the sticker was the winner.

It was quintessential Frank.

So on the day of the flight, Frank shows up in school with the tickets sticking out of his shirt pocket, loudly telling everyone “we’re going tonight to DC for dinner,” Frank attracted the attention of a few teachers who didn’t believe he was really doing this and one sorta-priest who did. 

I will only refer to this ‘pastoral counselor’ as Mark for that was his first name. Anyway, Mark alerted the Dean of Discipline (the former football coach and a really nice guy) and Frank was called down to his office where he was relieved of his tickets because in loco parentis and all that.

I mean, there were a few things Frank hadn’t considered: what if the plane was delayed for some reason? We’d need another cover story. What if we were delayed overnight? What if, God forbid, the plane went down and our parents had to learn about our fate from the local TV news crews? 

Stuff like that.

Well Frank came back from the Dean’s office to a class we shared and looking at his face I knew right away what happened. 

“Father Mark and Mr. Ward took my tickets away,” Frank sulked.

Well even though I was no longer on the flying itinerary, I couldn’t stand to see Frank this way so I did so. . .so. . . um, I did something in retrospect I’m not proud of but at the time seemed like great fun.

I pumped Frank up with indignation. I reminded him that those tickets were his property and what he did outside of the school on his own time was his own business. I could see Frank getting worked up.

“They had NO legal right to do that,” I told Frank. “Do you want the card of my mom’s lawyer?”

Well by the time I was through with him, ‘Fighting Frank’ stormed back in the Dean’s office 

demanding the return of his property. All that resulted was a shouting match, Frank not getting his tickets, and a possible detention, I really don’t remember.

Lest you think this shattered Frank, it didn’t. He would proudly re-tell of the shouting match for years afterwards. All I did was put a little starch in his shorts. It wasn’t the first time and wouldn’t be the last because, well, if you can’t play asshole with your friends sometimes, what’s the point?

It wasn’t really the Dean that was this issue here. It was the smarminess of ‘Father Mark’ that galled us. 

Mark wasn’t quite through with us yet, but it wouldn’t go the way he wanted. First, Frank’s mom, after having her usual fuss and feathers explosion, quickly forgave her son with no apparent punishment. 

Then the next week at the football game, I played my card.

Before the game, I went up to Father Mark and remonstrated with him about what a low thing he did by ruining our fun and taking Frank’s plane tickets. Mark sneered.

“You know, you’re name was on one of those tickets,” Mark said. “What if I were to tell your father about this?”

“OK father, he’s right up there six rows from the top on the corner in the brown coat; can’t miss him,” I said. And walked away knowing a delicious feeling of triumph I would rarely experience in life.

See, when I finally told dad about the abortive dinner flight, he simply said “sounds like fun; I would have let you go.”

I remember feeling light-headed and wondering if this was some kind of Twilight Zone family. Seriously, you could have knocked me over with a feather (and I’m pretty fat). Had I known this, I would have been the one to take Frank’s tickets for safeguarding until the end of the day.

The whole idea was pure Frank and he had a million of them. We were young and full of ourselves and looking for adventure where we could find it. I remember those days and the things we dared to do that we wouldn’t now and I think we’re poorer for it. 

But Frank was the pied piper of the adventure and scheme. I know my high school experience would have been far, far duller without him as a friend.

In the end I lost him when he had to choose between his firefighter friends and me over some stupid shit having to do with hard feelings over a fantasy football club. Frank tried to make peace between me and them but couldn’t do it. After that last phone call, we never spoke again. 

A big part of the reason was my stubbornness and self-justification that I was right and had a right to be aggrieved. And then, 11 years later and thanks to Facebook, we had a chance to reconnect. 

We almost did, but we didn’t. I tried to friend him on Facebook but he never accepted and I didn’t really push it, thinking he was still between the rock and the hard place I had put him in a decade before. I had hoped he would come to the class reunion. He didn’t. I had no idea that my window for reconciliation was going to be so short.

So, of course, I feel like an asshole, as usual. 

Frank’s family is planning a memorial service up in Ohio in the coming days. Many if not all of the people involved in the fantasy football group that I used to so enjoy being a part of will be there. And I think they still despise me, so I don’t know what to do. I don’t do well in public gatherings and old animosities don’t help.

But I want to say goodbye to my friend somehow. We went through too much for me not to pay respects. I know it sounds hokey, but a part of my past and a part of me died too. In the weeks since Frank’s death I keep remembering all the shit we would get into and all the fun we would have.

He was the best man at my second wedding.

Wherever you are Frank, I hope you can forgive me. If it takes all the Ativan in my storehouse to make it through, I will be at your service. But I want to know where you’re buried because I want to make it more personal than a memorial service. Whether you’re remains are in Ohio or Florida, I need some time there to say a prayer for you, just the two of us. 

It’s the least I can do.